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Appendix - References

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  1. AHRQ Activities Using Community-Based Participatory Research to Address Health Care Disparities. 2009. AHRQ Pub. No. 09-P012. 
  2. American's Health Insurance Plans. Tools to Address Disparities in Health: Data as Building Blocks for Changes. 2005; Washington, D.C.
  3. Amzel A, Ghosh C. National Newspaper Coverage of Minority Health Disparities. Journal of the National Medical Association 2007; 99(10): 1-6.  Available at http://www.nempha.org/National%20news%20coverage.pdf Accessed February 25, 2008.
  4. Asian & Pacific Islander American Health Forum. Diverse Communities Diverse Experiences: The Status of Asian Americans & Pacific Islanders in the U.S. (A Review of Six Socioeconomic Indicators and Their Impact on Health). 2005.  APIAHF: San Francisco, CA.
  5. Asian Americans/Pacific Islanders in Philanthropy. Growing Opportunities: Will Funding Follow the Rise in Foundation Assets and Growth of AAPI Populations? 2007; AAPIP: San Francisco, CA. Available at http://www.aapip.org/pdfs/AAPIP-GOpps4WWW.pdf Accessed February 25, 2008.
  6. Asian Health Services. CHC Research Collaboration Questionnaire.
  7. Association of Asian Pacific Community Health Organizations. AA&NHOPIs in the U.S. Fact Sheet. 2010. AAPCHO: Oakland, CA.
  8. Association of Asian Pacific Community Health Organizations. AAPI Limited English Proficiency (LEP) Fact Sheet. 2005. AAPCHO: Oakland, CA.
  9. Association of Asian Pacific Community Health Organizations. AAPI Health Data Database. 2009; AAPCHO: Oakland, CA. Available at: http://www.aapcho.org/site/aapcho/section.php?id=10973
  10. Association of Asian Pacific Community Health Organizations. AAPI Health Literature Database. 2009; AAPCHO: Oakland, CA. Available at: http://www.aapcho.org/site/aapcho/section.php?id=10974
  11. Association of Asian Pacific Community Health Organizations & National Association of Community Health Centers. Health Centers' Role in Reducing Health Disparities Among Asian Americans and Pacific Islanders. 2005; AAPCHO: Oakland, CA; NACHC: Washington, DC. 
  12. Barnes PM, Adams PF, Powell-Griner E. Health Characteristics of the Asian Adult Population: United States, 2004-2006.  Advanced Data from Vital and Health Statistics. 2008; No. 394.
  13. Bolin JN. Community-Based Participatory Research - Assessing a Community's Health Status Using Readily Available Secondary Data. 2007; Presentation file.
  14. Bordeaux BC, Wiley C, Tandon SD, Horowitz CR, Brown PB, Bass EB. Guidelines for Writing Manuscripts About Community-Based Participatory Research for Peer-Reviewed Journals. Progress in Community Health Partnerships: Research, Education, and Action. 2007; 1(3): 281-8. 
  15. Braunstein JB, Sherber NS, Schulman SP, Ding EL, Powe NR. Race, Medical Researcher Distrust, Perceived Harm, and Willingness to Participate in Cardiovascular Prevention Trials. Medicine. 2008; 81(1): 1-9.
  16. Butterfoss FD. Process Evaluation for Community Participation. Annual Review of Public Health. 2006; 27:323-40.
  17. Calman NS, Kitson K, Hauser D. Using Information Technology to Improve Health Quality and Safety in Community Health Centers. Progress in Community Health Partnerships: Research, Education, and Actions. 2007; 1(1): 83-8.
  18. CDC Prevention Research Center. Partnership Trust Tool. 2009. Available at: http://www.cdc.gov/prc/program-material/partnership-trust-tools.htm. Accessed: July 6, 2010.
  19. Changes in NIH Grant Application Procedure. NIH Center for Scientific Review. 2009.
  20. Chen MS Jr, Hawks BL. A Debunking of the Myth of Healthy Asian Americans and Pacific Islanders. Am J Health Prom. 1995; 9(4):261-8.
  21. Chien AT, Walters AE, and Chin MH. Community Health Center Quality Improvement: A Systematic Review and Future Directions for Research. The Johns Hopkins University Press. 2007; 1(1): 105-116.
  22. Chin M. Community-based participatory research: practical tips for CHCs and Researchers. 2006. Presentation file. 
  23. Common Mistakes in NIH applications  National Institutes of Health. 2005.
  24. Community Campus Partnership for Health. MOUs/MOAs. 2010. Available at: http://depts.washington.edu/ccph/commbas.html#MOU. Accessed: July 6, 2010. 
  25. Community Campus Partnerships for Health. Principles and Policies of CBPR. 2010. Available at: http://depts.washington.edu/ccph/commbas.html#Principles. Accessed: July 6, 2010. 
  26. Davis RM, Hitch AD, Nichols M, Rizci A, Salaam M, Mayer-Davis EJ. A Collaborative Approach to the Recruitment and Retention of Minority Patients with Diabetes in Rural Community Health Centers. Contemp Clin Trials. 2009; 30(1): 63-70.
  27. Eder M. The Starting Point for Research: Building a Research Infrastructure at Access Community Health Network. 2009; Presented at National Association of Community Health Centers, Community Health Institute.
  28. Education Network to Advance Cancer Clinical Trials (ENACCT)."Your Role in Cancer Clinical Trials." 2010.
  29. Flicker S, Travers R, Guta A, McDonald S, Meagher A. Ethical Dilemmas in Community-Based Participatory Research: Recommendations for Institutional Review Boards. Journal of Urban Health: Bulletin of New York Academy of Medicine. 2007; 84(4): 469-71.
  30. Freeman ER. Health Services and Clinical Research with Community Health Centers to Eliminate Health Disparities in Underserved Populations. 2007; Presented at National Association of Community Health Centers, Community Health Institute.
  31. Freeman ER. Health Services and Clinical Research with Community Health Centers to Eliminate Health Disparities in Underserved Populations. 2007; Presented at National Association of Community Health Centers, Community Health Institute.
  32. Frick K, Shi L, Gaskin DJ. Level of Evidence of the Value of Care in Federally Qualified Health Centers for Policy Making. Progress in Community Health Partnerships: Research, Education, and Action. 2007; 1(1): 75-82.
  33. Fried RA. Research in Community Health Centers. 1998; National Association of Community Health Centers, Inc. 
  34. Gardner R. Untitled. 2009; Presented at National Association of Community Health Centers, Community Health Institute.
  35. Ghosh C. Healthy People 2010 and Asian Americans/Pacific Islanders: Defining a Baseline of Information. American Journal of Public Health. 2003; 93(12): 2093-8.
  36. Giachello AL, author; Ashton D, Kyler P, Rodriguez ES, Shanker R, Umemoto A, eds. 2007. Making Community Partnerships Work: A Toolkit. White Plains, NY: March of Dimes Foundation.
  37. Gil EF, Bob S. Culturally Competent Research: An Ethical Perspective. Clinical Psychology Review 1999; 19(1): 45-55.  
  38. Harborview Medical Center. Ethnomed. 2010; Harborview Medical Center: Seattle, WA. 
  39. Hasnain-Wynia R, Pierce D, Haque A, Hedges Greising C, Prince V, Reiter J.  Health Research and Educational Trust Disparities Toolkit. 2007. Available at: hretdisparities.org. Accessed February 25, 2008.
  40. Hasnain-Wynia R., Pierce D, and Pittman MA. Who, When, and How: The Current State of Race, Ethnicity, and Primary Language Data Collection in Hospitals. 2004; The Commonwealth Fund.
  41. Hauser D. Using EHRs to Advance Research in Community Health Centers. 2009; Presented at National Association of Community Health Centers, Community Health Institute.
  42. Health Outreach Partners (formerly Farmworker Health Service, Inc). Data Collection Tools for Evaluation.
  43. Health Research & Educational Trust. Issue Brief: Collection of Race, Ethnicity, and Primary Language Data: Tools to Improve Quality of Care and Reduce Health Care Disparities. 2005.
  44. Health Research & Educational Trust. Presentation to Staff: Nuts and Bolts of Collecting Race, Ethnicity, and Primary Language Information from Patients. 2007.
  45. Health Resources and Services Administration. Cultural Competency and Health Literacy Resources for Health Care Providers. Available at: http://www.hrsa.gov/culturalcompetence/
  46. HRSA. Human Subjects Research: Protecting Human Subjects Training. Available at: http://www.hrsa.gov/humansubjects/ Accessed July 6, 2010.
  47. Hughes DL. Quality of Health Care for Asian Americans: Findings from the Commonwealth Fund 2001 Health Care Quality Survey. Pub # 525. 2002; The Commonwealth Fund. Available at http://www.naapimha.org/issues/CommonwealthHealthcare.pdf Accessed February 25, 2008.
  48. Institute of Medicine. Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care. 2002; The National Academies Press: Washington, DC. 
  49. Israel BA, Eng E, Schulz AJ, Parker EA (eds). Methods in Community-Based Participatory Research for Health. Jossey-Bass: San Francisco, CA; 2005.
  50. Israel BA, Schulz AJ, Parker EA, Becker AB. Review of Community-Based Research: Assessing Partnership Approaches to Improve Public Health. Annual Review of Public Health. 1998; 10: 173-202.
  51. Jones L, Wells K. Strategies for Academic and Clinician Engagement in Community-Participatory Partnered Research. JAMA. 2007; 297(4): 407-10.
  52. Kipnis K. Vulnerability in Research Subjects: A Bioethical Taxonomy. Available at http://www.onlineethics.org/cms/8087.aspx Accessed February 25, 2008.
  53. Louie KB. White Paper on the Health Status of Asian Americans and Pacific Islanders and Recommendations for Research. Nurs Outlook. 2001; 49: 173-8.
  54. Master Clinical Trial Agreement. 
  55. Minkler M, Blackwell AG, Thompson M, Tamir H. Community-based participatory research: Implications for public health funding. Am J Public Health. 2003; 93:1210-3. 
  56. Minkler M, Wallerstein N (eds). Community-Based Participatory Research for Health: From Process to Outcomes, 2nd Edition. 2008; San Francisco: Jossey-Bass.
  57. National Association of Community Health Centers, Inc. Research in Health Centers: How to Get Started. 1998. Presentation File.
  58. National Association of Community Health Centers. Participation in Clinical Research Involving Human Subjects. 2002; Bethesda, MD. 
  59. NIH Center for Scientif Review. What Happens to Your Grant Application: A Primer for New Applicants. NIH. 2007.
  60. NIH Center for Scientific Review. Grant Application Submission and Review: Useful Web Links. NIH. 
  61. NIH Insider's Guide to Peer Review for Applicants.  NIH Center for Scientific Review. 2008.
  62. Norris KC, Brusuelas R, Jones L, Miranda J, Duru OK, Mangione CM. Partnering with Community-Based Organizations: An Academic Institution's Evolving Perspective. Ethn Dis. 2007; 17(1 Suppl 1): S27-32. 
  63. Oneha MF. Building a Research Infrastructure at Your Health Center. 2009; Presented at the National Association of Community Health Centers, Community Health Institute.
  64. Oneha MF. Community Health Centers: Why Engage in Research? 2010. Draft.
  65. Panapasa S. Social, Demographic, and Cultural Characteristics of Pacific Islanders. In: Trinh-Shevrin C, Islam NS, Rey MJ. Asian American Communities and Health: Context, Research, Policy, and Action. San Francisco, CA: Jossey-Bass; 2009: 50-72.
  66. Proser M, Aaron KF, Meyers D, Cornell C. Building a Research Agenda for Community Health Centers and the Medically Underserved: Meeting Proceedings. The John Hopkins University Press. 2007; 1(1):67-73.
  67. Proser M, et al. Building a Research Agenda for Community Health Centers and the Medically Underserved: Meeting Proceedings.  The Johns Hopkins University Press 2007; 1(1): 67-73. Available at http://muse.jhu.edu/demo/progress_in_community_health_partnerships_research_education_and_action/v001/1.1proser.pdf Accessed February 25, 2008.
  68. Proser M. Health Centers & the Medically Underserved: Building a Research Agenda. 2006; Presented at NACHC CHI 2006. 
  69. Public Responsibility in Medicine and Research. Prim&r's Am&rpsand Blog. Available at: http://primr.blogspot.com. Accessed July 6, 2010.
  70. Reid CE, Brief E, LeDrew R. Our Common Ground: Cultivating Women's Health Through Community-Based Research. 2009; Vancouver: Women's Health Research Network.
  71. Sample Memorandum of Agreement between Academia and Community Health Center.
  72. Sample Memorandums of Understanding (MOU)
  73. Sample Statement of Work.
  74. Schoultz J, Oneha MF, Magnussen L, Hla MM, Brees-Saunders Z, Dela Cruz M, Douglas M. Finding Solutions to Challenges in Community-Based Participatory Research Between Academic and Community Organizations (2006). Journal of Interprofessional Care. 2006; 20(2):133-44. 
  75. Sim S-C. Why Should Nonprofits Care? The Journal for Nonprofit Managers. 2009; 21(6): 1-5.
  76. Southern Illinois Practice Research Organization. A collaborative Practice-Based Research Network (PBRN). 2009; Presented at National Association of Community Health Centers, Community Health Institute.
  77. Strasburger JF. Meeting the Research Infrastructure Needs of Micropolitan and Rural Communities. WMJ. 2009;108(3):133-8.
  78. Sussman AL, Rivera M. 'Be Gentle and Be Sincere About It': A Story About Community-Based Primary Care Research. Annals of Family Medicine. 2008; 6(5); 463-4.
  79. The Examining Community-Institutional Partnerships for Prevention Research Group. Developing and Sustaining Community-Based Participatory Research Partnerships: A Skill-Building Curriculum 2006; Available at http://www.cbprcurriculum.info/ Accessed February 25, 2008.
  80. Tobin JN. Community-Based Models of Research: Views from the Health Center. 2007; Presented at the National Association of Community Health Centers, Community Health Institute
  81. Two Feathers K, Kieffer EC, Palmisano G, Anderson M, et al. Racial and Ethnic Approaches to Community Health (REACH) Detroit Partnership: Improving Diabetes-Related Outcomes Among African-American and Latino Adults. Am J Public Health. 2005; 95(9):1552-60.
  82. U.S. Department of Health & Human Services. Community Health Status Indicators. Available at; http://communityhealth.hhs.gov/HomePage.aspx?GeogCD=&PeerStrat=&state=&county=. Accessed July 6, 2010. 
  83. Urban Institute. Researcher Toolkit: Data Methods. Available at: http://www.urban.org/toolkit/data-methods/index.cfm. Accessed July 6, 2010.
  84. Waianae Coast Comprehensive Health Center (WCCHC). Data Request Form. 2003. 
  85. Waianae Coast Comprehensive Health Center (WCCHC). Institutional Review Board (IRB) Scientific Review Checklist.
  86. Waianae Coast Comprehensive Health Center (WCCHC). Sample Grant Application. 2006.
  87. Wallerstein NB, Duran B. Using Community-Based Participatory Research to Address Health Disparities. Health Promotion Practice. 2006; 7(3): 312-23.
  88. Wang C, Burris MA. Photovoice: Concept, Methodology, and Use for Participatory Needs Assessment. Health Education & Behavior. 1997; 24: 369-87.
  89. Weijer C, Goldsand G, Emanuel E. Protecting Communities in Research: Current Guidelines and Limits of Extrapolation. Nature Genetics. 1999; 23(3):275-80. 
  90. Weijer C. Protecting Communities in Research: Philosophical and Pragmatic Challenges. Cambridge Quarterly of Healthcare Ethics. 1999; 8: 501-13. 
  91. Wendler D, Kington R, Madans J, Van Wye G, Christ-Schmidt H, Pratt LA, et al. Are Racial and Ethnic Minorities Less Willing to Participate in Health Research? PLoS Med. 2006; 3(2):e19.
  92. Williams D. The Monitoring of Racial/Ethnic Status in the USA: Data Quality Issues. Ethnicity & Health 1999; 4(3): 121-137. 
  93. Wong K. Community-Based Participatory Research and Community Health Centers. 2006; Presented at the National Association of Community Health Centers, Community Health Institute. 
  94. Ybarra V, Postma J. El Proyecto Bienestar: An Authentic CBPR Partnership in Yakima Valley. Partnership Perspectives. 2007; IV:I. Seattle, WA: 34-43.
  95. Ybarra V. CHC Research Involvement: Developing a Mutually Beneficial Relationship. 2006; Presented at the National Association of Community Health Centers, Community Health Institute.

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